Highlights
- •Non-ambulant youth with NMD rated their mental wellbeing higher than youth in the general population.
- •More frequent health complaints were associated with lower mental wellbeing.
- •Mental wellbeing was not independently associated with physical health variables.
- •Mental wellbeing was independently associated with academic achievement and family support.
- •Enabling youths’ educational attainment and attending to social support may optimise youth's wellbeing.
Abstract
The physical and social challenges associated with neuromuscular disorders may impact
mental wellbeing in non-ambulant youth during the more vulnerable period of adolescence.
This cross-sectional survey investigated non-ambulant youths’ mental wellbeing and
relationships with physical health, participation and social factors. The conceptual
model was the International Classification of Functioning, Disability and Health (ICF).
Thirty-seven youth aged 13–22 years old (mean age 17.4 years; n = 30 male; n = 24
Duchenne Muscular Dystrophy) and their parents provided biopsychosocial data through
a comprehensive self-report questionnaire. The primary outcome measure was the Warwick
Edinburgh Mental Wellbeing Scale (WEMWBS). Relationships between mental wellbeing
and variables within and across each ICF domain were explored using linear regression
models. Mean WEMWBS scores (55.3/70 [SD 8.1]) were higher than for typically developing
youth and comparable to youth with other chronic conditions. Over half of youth reported
severe co-morbidities across all body systems. Multivariable modelling indicated that
mental wellbeing was independently associated with academic achievement and perceived
family support but not with physical health variables. Beyond management of physical
co-morbidities, enabling youths’ educational attainment and attending to social support
likely optimises youth's wellbeing.
Keywords
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Article info
Publication history
Published online: September 13, 2018
Accepted:
August 29,
2018
Received in revised form:
July 29,
2018
Received:
April 25,
2018
Identification
Copyright
© 2018 Elsevier B.V. All rights reserved.
