Neuromuscular Disorders
Volume 19, Issue 12 , Pages 805-812, December 2009

The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Neuromuscular Module☆

  • Susan T. Iannaccone

      Affiliations

    • Department of Pediatrics, UT Southwestern Medical Center, Dallas, TX, USA
    • Department of Neurology, UT Southwestern Medical Center, Dallas, TX, USA
    • Corresponding Author InformationCorresponding author. Address: Department of Pediatrics, UT Southwestern Medical Center, 5323 Harry Hines Boulevard, Dallas, TX 75390-9063, USA. Tel.: +1 214 559 8383.
    • ,
  • Linda S. Hynan

      Affiliations

    • Department of Clinical Sciences and Psychiatry, UT Southwestern Medical Center, Dallas, TX, USA
    • ,
  • Anne Morton

      Affiliations

    • Department of Psychology, Texas Scottish Rite Hospital for Children, Dallas, TX, USA
    • ,
  • Renee Buchanan

      Affiliations

    • Department of Psychology, Texas Scottish Rite Hospital for Children, Dallas, TX, USA
    • ,
  • Christine A. Limbers

      Affiliations

    • Department of Psychology, College of Liberal Arts, Texas A&M University, College Station, TX, USA
    • ,
  • James W. Varni

      Affiliations

    • Department of Pediatrics, College of Medicine, Texas A&M University, College Station, TX, USA
    • Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, TX, USA
    • ,
  • the AmSMART Group

      Affiliations

    • AmSMART members: Mariam Andersen, Dallas, TX; Brenda Wong, MD, and Paula Morehart, Cincinnati, OH; Barry Russman, MD, and Kirsten Zilke, Portland, OR; Robert Leshner, MD, Barbara Grillo, and Angela Zimmerman, Richmond, VA and Washington, DC; Stephen Smith, MD, John Day, MD, and Heather Wendorf, St. Paul, MN; Kathy Swoboda, MD, and Sandra Reyna, Salt Lake City, UT; Richard Finkel, MD, and Kim Schadt, Philadelphia, PA; JiriVajsar, MD, and Lynn MacMillan, Toronto, CA; Anne Connolly, MD, and Charlie Wulf, St. Louis, MO; Nancy Kuntz, MD, and Wendy Korn-Peterson, Rochester, MN; Petra Kaufmann, MD, and Jessica O’Hagen, New York, NY; Basil Darras, MD, and Erica Sanborn, Boston, MA.

Received 23 April 2009; received in revised form 25 September 2009; accepted 30 September 2009.

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☆ Competing interests: Dr. Varni holds the copyright and the trademark for the PedsQL™ and receives financial compensation from the Mapi Research Trust, which is a non-profit research institute that charges distribution fees to for-profit companies that use the Pediatric Quality of Life Inventory™.

PII: S0960-8966(09)00623-3

doi:10.1016/j.nmd.2009.09.009

Neuromuscular Disorders
Volume 19, Issue 12 , Pages 805-812, December 2009

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