Neuromuscular Disorders
Volume 18, Issue 12 , Pages 983-988, December 2008

Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation

  • Jean K. Mah

      Affiliations

    • Department of Pediatrics, Faculty of Medicine, University of Calgary, 2888 Shaganappi Trail N.W., Calgary, AB, Canada T3B 6A8
    • Department of Clinical Neurosciences, Faculty of Medicine, University of Calgary, Calgary, AB, Canada T2N 2T9
    • Corresponding Author InformationCorresponding author. Address: Department of Pediatrics, Faculty of Medicine, University of Calgary, 2888 Shaganappi Trail N.W., Calgary, Alta., Canada T3B 6A8. Tel.: +1 403 955 2296; fax: +1 403 955 2922.
    • ,
  • Jennifer E. Thannhauser

      Affiliations

    • Division of Applied Psychology, Faculty of Education, University of Calgary, Calgary, AB, Canada T2N 1N4
    • ,
  • Deborah A. McNeil

      Affiliations

    • Decision Support and Research Team, Calgary Health Region, Calgary, AB, Canada T3B 6A8
    • Community Health Sciences, Faculty of Medicine, University of Calgary, Calgary, AB, Canada T2N 4N1
    • ,
  • Deborah Dewey

      Affiliations

    • Department of Pediatrics, Faculty of Medicine, University of Calgary, 2888 Shaganappi Trail N.W., Calgary, AB, Canada T3B 6A8
    • Community Health Sciences, Faculty of Medicine, University of Calgary, Calgary, AB, Canada T2N 4N1
    • Behavioural Research Unit, Alberta Children’s Hospital, Calgary, AB, Canada T3B 6A8

Received 22 February 2008; received in revised form 23 June 2008; accepted 4 September 2008.

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PII: S0960-8966(08)00621-4

doi:10.1016/j.nmd.2008.09.001

Neuromuscular Disorders
Volume 18, Issue 12 , Pages 983-988, December 2008

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